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    sunwoman3663 posted an update Saturday, Mar 31, 2012, 3:57pm EDT, 13 years, 6 months ago

    Shelly: don't expect everyone to be open to new ideas... even doctors. For example, my friend felt she had to submit to chemo as well as all the holistic things she was doing, even though she was doing well without chemo. Family pressure and all that. Well cancer came back, bad reaction to chemo (taxol?) and she is now totally holistic and doing amazingly well for (knock wood) three years. Her feeling now? "I wasn't open to natural med. then... so I needed to do that chemo. I'm totally open to natural now so I don't need chemo." Dr. Rothfeld has been criticized by a lot of docs for his thoughts on FD being LD in many cases. But in the past couple of years doctors are sending patients to him, since the CDC has broken down and admitted that there are probably hundreds of thousands more cases of Lyme than previously thought; that they are diagnosed with CFS (chronic fatigue) or FD. In all cases he checks for adrenal exhaustion because it's all bad for the endocrine system. He himself has MS, well controlled, and he has found a few patients that were mistakenly diagnosed with MS.. yep, they had Lyme!! He is an expert on MS so would know it if he found it.

    It's all fascinating but do you know what? I hate science - all of it. I sucked at it in school -- biology, anatomy, physics, chemistry, yada yada yada... I have not found it easy to read all the crapola that I have in the last few years. I have been confused more than once in a while. Fortunately, I've had the best practitioners (angels) around me all this time so they painstakingly explained things over and over again until I could really make good decisions. For many people dealing with disease it is easier just to take the word of one doc and run with it. I could never do that, but never try to talk folks out of what they're doing nor do I make suggestions for care, supplements, or even a health care person unless they ask me. It's just too complex an issue and each individual has so much fear when told they have a debilitating, possibly fatal disease.

    It's all so complex and every practitioner and every patient has to do their due diligence in researching, make their own decisions and trust themselves to do the right thing.

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